 O/T Medical question Marfan Syndrome |
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| spare time toys |
 Dec 25 2007, 04:19 PM
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hooked on grilling food.  Group: Members Posts: 4,059 Joined: 3-April 04 From: West Plano Tx Member No.: 1,884 Region Association: Southwest Region  |
Does anyone here have a relative with this? Our little girl has been diagnosed with it. They did the echocardio and she has a slight enlarging of the aorta. They said to come back in a year and they will remeasure, I just want to know how this changes things if you have it in your house? She is just not suposed to play high impact sports.
Thanks for any info. -Larry |
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| ConeDodger |
Dec 25 2007, 04:25 PM
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Apex killer! Group: Members Posts: 24,099 Joined: 31-December 04 From: Tahoe Area Member No.: 3,380 Region Association: Northern California 
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QUOTE(spare time toys @ Dec 25 2007, 02:19 PM)  Does anyone here have a relative with this? Our little girl has been diagnosed with it. They did the echocardio and she has a slight enlarging of the aorta. They said to come back in a year and they will remeasure, I just want to know how this changes things if you have it in your house? She is just not suposed to play high impact sports. Thanks for any info. -Larry Phenotypically these are usually tall people with long features including fingers and hands. I recall from anesthesia residency that they can develop cardiac dysrhymia and clots rather suddenly. Surely there is a society or organization that has better information. Sorry, I really don't recall much more than that. I am not trying to scare you. I recall they live pretty much normal lives. |
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Posts in this topic
spare time toys O/T Medical question Marfan Syndrome Dec 25 2007, 04:19 PM
spare time toys We have been reading on the natiolal marfan site. ... Dec 25 2007, 04:32 PM echocanyons Phenotypically speaking there are half a dozen oth... Dec 25 2007, 10:20 PM sww914 I don't know anything about Marfan's syndr... Dec 25 2007, 10:57 PM Dr Evil That is not a usual diagnoses, indeed. Definitely ... Dec 26 2007, 01:57 AM Rob Ways There is a National Marfan Society: http://www.mar... Dec 26 2007, 02:27 AM Dr Evil Most of the sports athletes with sudden failure of... Dec 26 2007, 03:46 AM orthobiz As a regular practicing orthopedist, I've seen... Dec 26 2007, 03:56 PM
spare time toys She went in for just some normal stuff and saw a n... Dec 27 2007, 08:30 AM |
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