 O/T Medical question Marfan Syndrome |
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| spare time toys |
 Dec 25 2007, 04:19 PM
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hooked on grilling food.  Group: Members Posts: 4,059 Joined: 3-April 04 From: West Plano Tx Member No.: 1,884 Region Association: Southwest Region  |
Does anyone here have a relative with this? Our little girl has been diagnosed with it. They did the echocardio and she has a slight enlarging of the aorta. They said to come back in a year and they will remeasure, I just want to know how this changes things if you have it in your house? She is just not suposed to play high impact sports.
Thanks for any info. -Larry |
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| spare time toys |
Dec 25 2007, 04:32 PM
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hooked on grilling food. Group: Members Posts: 4,059 Joined: 3-April 04 From: West Plano Tx Member No.: 1,884 Region Association: Southwest Region |
We have been reading on the natiolal marfan site. We are just looking for some one with personal experiance. She is tall 5' 11" and 110 lbs and just 14. She has scholieosis and the wider wing span than height. She fits 95% of the criteria and we have to go to the genetics guy after the first and they can do the final confromation when they look at her DNA and chromozones.
Scarry stuff from the reading. |
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Posts in this topic
spare time toys O/T Medical question Marfan Syndrome Dec 25 2007, 04:19 PM
ConeDodger
Does anyone here have a relative with this? Our ... Dec 25 2007, 04:25 PM echocanyons Phenotypically speaking there are half a dozen oth... Dec 25 2007, 10:20 PM sww914 I don't know anything about Marfan's syndr... Dec 25 2007, 10:57 PM Dr Evil That is not a usual diagnoses, indeed. Definitely ... Dec 26 2007, 01:57 AM Rob Ways There is a National Marfan Society: http://www.mar... Dec 26 2007, 02:27 AM Dr Evil Most of the sports athletes with sudden failure of... Dec 26 2007, 03:46 AM orthobiz As a regular practicing orthopedist, I've seen... Dec 26 2007, 03:56 PM
spare time toys She went in for just some normal stuff and saw a n... Dec 27 2007, 08:30 AM |
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