O/T Medical question Marfan Syndrome Options

[spare time toys]

Does anyone here have a relative with this? Our little girl has been diagnosed with it. They did the echocardio and she has a slight enlarging of the aorta. They said to come back in a year and they will remeasure, I just want to know how this changes things if you have it in your house? She is just not suposed to play high impact sports.

Thanks for any info.

-Larry

[EdwardBlume]

There is a National Marfan Society: http://www.marfan.org/nmf/index.jsp

Here is a link to the Nor Cal site: http://www.norcalmarfan.org/

I played in a charity poker tournament a few years ago with proceeds going towards it - mainly for educating physicians on how to diagnose early symptoms. From what I understand, Marfan is a condition of hyper growth which can manifest itself in unusual height or growth. The area of concern is typically the heart where an enlarged heart leads to weaker arterial tissue prone to rupture and failure. The person I know named Todd Kreuger, has the condition, is easily 6' 10", has had open heart surgery before age 30, and is a very strong advocate for stronger screening. It is thought that some famous people with Marfan may include Abe Lincoln, John Ritter, and numerous sports athletes with sudden heart failure and death.

Good luck and may God be with you and your family!